Recorded live at ESSENCE Festival, NMQF’s Taylor Lopez sits down with Tamika (“Tama”) Smith—author, entrepreneur, and lupus warrior—and her mother, Rita “Badgal Riri” Smith, for a deeply personal and practical conversation about diagnosis, advocacy, caregiving, and healing.

Tamika shares the early warning signs she overlooked—debilitating headaches that felt like her “brain was on fire,” brain fog, crushing fatigue, and even facial droop—and how repeated “normal” labs delayed answers. She opens up about navigating medical gaslighting, pushing for clarity after a positive ANA, and what finally led to her lupus diagnosis.

Rita offers a powerful caregiver’s perspective—what it feels like when your child can’t walk, the grief no one talks about, and the strength required to preserve dignity while sharing the load.

Together, they discuss the financial and emotional toll of chronic illness, what patients wish clinicians understood, and why Tamika says, “the giant is sleeping”—a reminder that protecting your peace is key to preventing flares.

This is a conversation about boundaries, documentation, community, and reclaiming your power.

What You’ll Learn:

• The red flags: severe headaches, brain fog, crushing fatigue, facial or eyelid droop
 • Why a positive ANA plus “normal” follow-ups can delay diagnosis—and how to keep advocating
 • Coping tools: setting boundaries, saying no, prioritizing sleep, and managing stress to prevent flares
 • Patient power strategies: requesting full medical records, tracking dates and symptoms, documenting everything
 • The caregiver perspective: preserving dignity, sharing responsibility, and finding support
 • The importance of community support groups and peer networks

Resources:

Lupus education & community: beyondlupus.org
More equity-focused health coverage: fyh.news